Saturday, June 24, 2017

Don't Be A Zebraphobe

An apt comparison: So a person comes out to their family as gay. The family is traditional/religious, and disowns him/her. All of a sudden, that persons' character, what he/she stood for, who/how he/she is inside, has all become "bad" thing in others' who mattered to him/her's eyes. It is so hurtful. It's hard to not feel a sense of "I'm a bad person" ism, in this position. There are no words to describe how hurtful it is to have your family, people who raised you and bonded with since young, reject you and treat you like this, simply because you happened to have the "wrong" sexual orientation. Therefore, somehow, you yourself are "in the wrong" in their eyes... It shouldn't be this way, but sometimes it is.
Today and now, most people consider the above to be Homophobia, to be a form of unacceptable abusiveness. It is. So, what about Zebraphobia? What is that you say? How is it a form of relational abusiveness, also? Let me tell you ..
So what about if you had a serious illness, but you had the "wrong" one, and therefore, you are not cared for in the same manner as you would if you had the "right" illness to be cared for. Instead, on top of being sick, you receive rejection and abuse. Does that sound cruel and ridiculous? I think so.
Take this next example. A person feels unwell and tired, begins to fall ill, and in time, becomes disabled by it. They have many debilitating but strange symptoms that doctors cannot easily explain. We're at a time in terms of complex chronic illness, where science is detrimentally behind in terms of many newly presenting illness epidemics out there. People need to be aware of this, and that it's a crisis, and that people clearly ill with less-than-explainable/fixable symptoms should not be flagged as "horrible nutcases", but as victims afflicted by the new "zebra health condition" epidemic of now.
But instead, people, especially professionals, and also, people in close contact with the person who is ill, have to get their selfish egos involved in it. There's no direct answer, no easy fixes, it's complex to manage, to understand, and it keeps getting worse. At the end of the day and aside from all that, the person is suffering, becomes disabled, and needs help somehow, and in some way. But no - they need to blame the victim. They somehow need to start making a negative pathology of the suffering victim of the unusual illness, by perverting their character, finding all sorts of other "reasons" as to why the person appears to be getting sick.
These reasons relate to the persons' quality of character, itself. The person is all of a sudden framed as a nutcase, a selfish, awful histrionic, who is out to burden people...to "vamp" them with their need for understanding, help, and ultimately, solutions. Would this ever be done to a person with a known severe illness, like cancer, or some other more common and known illness? I think not. It's amazing how people behave when they are faced with something that is "different", in this case, a medical condition which is "zebra"(diverges from the norm) albeit very serious and debilitating.
Fear and insecurity create ugly relational cognitive distortions like this. It's a sick "survival of the fittest" attitude. Has the zombie apocalypse happened yet? I didn't think so, but many people are somewhat behaving as though it has, almost. They can't handle that they don't know something, that they don't understand how to help, and this blindsides them. This then somehow leads to attacking the victim. You would think that when a person is suffering and getting worse in illness, compassion would be the thing that should come about in response. However, when it comes to "medical zebra" situations, the exact opposite is often what the response is.
Human beings, including those who one had thought "loved and cared for" them, somehow become more like cold blooded vipers in something of a "survival of the fittest" mode, when their "loved one" falls ill with a zebra health condition. The person they once cared for and loved is now seen as "crazy, and annoying nutcase/burden" not a sick and suffering person they should try to/care to help. This is the affect of Zebraphobia.
It is both tragic and disturbing. I believe that the way in which the world "runs" today is at least partly responsible for this kind of behaviour, born out of a lack of being in touch with the core principles of humaneness and virtue. Many of us have forgotten who we really are in this whirlwind of modern and corrupted global capitalism. Again, it's somewhat "zombie apocolayptic" in behaviour, tbh, but anyways ..
So this person suffers day in and day out, with weakness, severe pain, fatigue, challenges with eating and digestion which cause lack of absorption, which then further contributes to weakness, reactive immune system that is susceptible to infections and all kinds of allergic/intolerant reactions, and in all this, they suffer with reactive depression, anxiety, mood swings as feelings of wellness fluctuate unpredictably. It's all hard on a persons' psyche. Especially when responses from those around them, who are supposed to care, are cold blooded, un-empathic , and even abusive, in ways described above.
So they change. They find ways to cope, good and bad .. but the worst part of all is that, oftentimes, doctors cannot readily explain the persons' illness and help them. Many doctors are intensely "zebraphobic" as many of us know full well. We already have to take abuse from doctors frequently, and that is bad enough...but hen, the zebraphobic reactions from family and friends add gross insult on injury! Then, it all piles up. It feels like full blown abuse and torture for the zebra in this position. It is extremely traumatic. Many sadly unlucky zebras have had their healthcare providers, family, and friends turn "zebraphobic" on them. Sadly, it happens to many of us zebras.
Many of us commit suicide, due to this treatment. We come to feel so badly about ourselves inside, and in addition, we're in a lot of physical pain, weakness, fatigue and scary unknown symptoms for in which seem to have no answers in sight. It is a potent and dangerous combination in which, not surprisingly, can result in backing someone into a corner because they "just want out." This is how suicide happens. People commit suicide in response to homophobia, and for reasons that parallel in ways, people commit suicide due to zebraphobia.
Those of us who survive these ideational feelings end up trying to do something to divert, to hold hope, to quell pain, to hone purpose and meaning in life. We do things at our own pace, from home, often in the arts, or with activism, to re-channel our immense pain and suffering. We hold onto that for dear life. I'm on of those people .. and I can tell you that doing this is not easy. Because in spite, many people, with their ugly viper-ish, zebraphobic and anti-neurodivergent attitudes, try to throw rocks at this also. These people are such ignorant minions, following suit with the current wave of zebraphobic callousness - they're mindless followers. It could be compared to hecklers during the witch trials.
It's a fragile, intricate little "pride parade" some of us zebras comprise with our "work from home" passions. It's skeleton is made of thinly webbed crystals of hope and love and strength, etched with our own individual patterns, arranged for display with the hope of making a purposeful impact, via whatever angle we do that from - whether it be blogging/vlogging, the arts, writing, music, etcetera. It an arrangement which is like a passionately-constructed shield surrounding our hurting hearts and souls - and yet - some cruelly ignorant min-twits try to attack it.
Like I said in another blog, that's not just "raining" on someone's parade - that's more like spitting on it, or even, dare I say it, pissing on it .. or worse than that ..and it's like; How dare you. Yes, some people have the nerve. It is because of Zebraphobia. Zebraphobia blocks people's ability to have a compassionate, empathic and positive view, whence it encourages apathy and hate.
Anyways ..
So for a long time, nothing shows up in typical conventional medical tests, when it comes to zebra medical conditions. Eventually, as the medical zebra gets more severe, things might show up here and there. Some of us end up becoming gravely ill, unto terminally ill. We end up in things like organ failure, losing mobility totally, or having a sudden death from a major event like a heart attack or stroke .. and then it's too late. For some of us, it is only then that family and friends see that one is *obviously* ill and start to take it seriously, to hone a little empathy. By then, it's a little too late, folks..
People are murdered by homophobia, and people are murdered by Zebraphobia. Yesiree, they truly are. Whether it be by negligence or suicide. Zebraphobia is killing zebras everywhere.

Be one more person who will help put it to a stop. Help save lives. Support us. Learn about zebra conditions, like POTS/dysautonomia, Ehlers-Danlos Syndrome, Lyme, Chronic Fatigue, etc.. Don't discriminate. Don't react "zebraphobically."
Learn to question the current. Learn to accept empirical evidence in the fact that hundreds upon thousands of people report eerily SIMILAR experiences, in spite of the specific medical/scientific confirmation as to why, which is dangerously lacking. Realize it's not a nuisance or a lie, but that it is serious and dangerous. Realize that your help is needed to acknowledge zebra illnesses as real problems. From there, people can support the notion of desperately needed research. From there, interest to hone the finances required for such research will come about.
People. Have objective independent thinking. Have compassion. Save yourself the guilt and regret you may experience later, should anything bad happen to your suffering zebra family member/friend, and you never got the chance to apologize, make peace, say goodbye respectfully. We are real. We exist. We suffer. The suffering is real. The attempts to cope are true warrior-dom. Have respect. Have empathy. Don't be another Zebraphobe.

Rosie G.

www.bionicrose.org

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